I've seen a lot of people do the ALS ice bucket challenge. Some of those people had probably never heard of ALS before being challenged. Growing up I had a friend who watched her dad wither away due to ALS. He was diagnosed when she was in elementary school and he died when she was in middle school. I remember seeing him at her birthday parties tucked away in a back room of their house in a wheel chair while her mother ran between caring for him and managing a houseful of screaming kids. She wanted her daughter to be able to enjoy the same things every other kid got to enjoy even though she didn't have a "normal" family. As an outsider it was hard to see her father deteriorate I can't imagine how hard it must have been for my friend and her family to experience his illness.
My friend and her mother have both participated in the ice bucket challenge and in both of their videos they remind viewers that they can get information and make donations at alsa.org.
I always knew that ALS was a little known disease. I actually did a report on Lou Gerhig in elementary school around the same time my friend's dad was diagnosed with ALS (AKA Lou Gerhig's Disease). I rarely hear anyone speak of it. I've never seen a walk/run or a fundraiser for it of any kind. I think it's great that this ice bucket challenge has brought it to the forefront of people's minds. As is the guy in the video. If you haven't seen this yet you need to take 6 minutes of your day and watch it. It starts out really silly and funny, but it takes a serious turn after the ice bucket. That's the part you really need to see.